My journey speaking out about Hyperacusis /Tinnitus
Doctor appointment went well, my medical papers are all updated with my disability, I'm am proud to say I can still work... / with limitations but I'm not letting this thing kick me. Next up look into scheduling the retraining therapy.
It was a hard road to get to this point. I was given a hard time about my last medical form my doctors office gave me. I thought it was informative, the doctors office thought they gave plenty of information but some people said it still wasn't enough.
Example:
Medical Diagnoses: Patient had surgery from otitis media and development hyperacusis which persists along with directional problems.
Yet they said: 'It doesn't say you have sensitivity to sounds. It doesn't say you have to.....'
Describe what medical care or treatment would assist your patient to be restored to self-sufficiency: Possible retraining for hyperacusis and directional retraining.
If work limitation indicate what limits apply: If pt is in physical danger because of direction issues with hearing, pt may need different position.
Legally I MUST except any job offer because it's not considered a permanent disability, I am still able to work. Which I've been telling them all a long that I thought I had more than proven that FACT since I have been working since right after the surgery all I was asking was that they accommodated my needs which was 'low volume environment.' It's just to painful for me to be around a lot of people and all the sounds.
Now the doctors note takes it further stating I have hyperacusis with tinnitus and history of otitis media. Again stating the therapy for hyperacusis and tinnitus and that patient is overly sensitive to sound, and will use her own discretion regarding comfortable volume and need for ear plugs.
Each time I was explaining my medical issues; they kept saying it doesn't say that. I was under going a lot of additional stress which in turn flared up the tinnitus even more which in turn flared up the hyperacusis even more which could have been avoided.
You have no idea how exhausting it has been to be an advocate for oneself.. After one day being fine and then suddenly having my world changed.
It was a hard road to get to this point. I was given a hard time about my last medical form my doctors office gave me. I thought it was informative, the doctors office thought they gave plenty of information but some people said it still wasn't enough.
Example:
Medical Diagnoses: Patient had surgery from otitis media and development hyperacusis which persists along with directional problems.
Yet they said: 'It doesn't say you have sensitivity to sounds. It doesn't say you have to.....'
Describe what medical care or treatment would assist your patient to be restored to self-sufficiency: Possible retraining for hyperacusis and directional retraining.
If work limitation indicate what limits apply: If pt is in physical danger because of direction issues with hearing, pt may need different position.
Legally I MUST except any job offer because it's not considered a permanent disability, I am still able to work. Which I've been telling them all a long that I thought I had more than proven that FACT since I have been working since right after the surgery all I was asking was that they accommodated my needs which was 'low volume environment.' It's just to painful for me to be around a lot of people and all the sounds.
Now the doctors note takes it further stating I have hyperacusis with tinnitus and history of otitis media. Again stating the therapy for hyperacusis and tinnitus and that patient is overly sensitive to sound, and will use her own discretion regarding comfortable volume and need for ear plugs.
Each time I was explaining my medical issues; they kept saying it doesn't say that. I was under going a lot of additional stress which in turn flared up the tinnitus even more which in turn flared up the hyperacusis even more which could have been avoided.
You have no idea how exhausting it has been to be an advocate for oneself.. After one day being fine and then suddenly having my world changed.
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