Hyperacusis: The struggle to gain ones independence
February 15, 2014
"From my view... the streets look so
peaceful... not a single car moving... nor person walking... the snow falls at
a steady rate which equals that of the dead of winter... I can almost hear my
childhood call out to me as I bundled up to go out in the snow... walking in
the fields.. the woods behind my home where only nature and I stood alone... a nearby
stream the artwork of god himself... from time to time you'd hear the thump of
a pile of snow falling from the trees... it was there in my youth... those moments
where the foundation of this writers imagination taking note..." wspickerman
I've gotten use to documenting things that happen specific outings, what causes pain when, how long, the onset of symptoms. I have come to realize a good day from a bad day. Hence a good day is a day where I can tolerate to a point the sounds around me, stay somewhat focused, force myself through the day.
A bad day, I don't like those much. I don't like talking about how every sound in the world seems to cause me pain. It doesn't matter how loud the sounds are because to you they are just sounds. The clock on the wall, refrigerator hum, tv on a volume of five, a cars muffler on a cold day, the ring or buzz of a phone, paper shuffling or noise from the keyboard. Yes, even the keyboard and scroll of a mouse. The day all voices seem to echo with such vibration in my ears even with the earplugs in, even with the earmuffs on. No, I like those days not!
Since my new career path as a journalist writing for the examiner and yahoo, I am given the ability to work at a pace suited to my needs. If my tinnitus has had me up since 12:00 a.m. I can at least sit down at my computer and work. If my hyperacusis is flared up in the day, I can take a break or stop for the day because I have been up working five hours before everyone else has started his or her day.
I am very strict about my surroundings, where I go, when I go and yet I still can't seem to find that right balance. Just when I think, I have found it and can notice a change; when I think I might have some sort of improvement. I realize it is not improvement; it is my strict routine that I have put into place that gives me such comfort. If there is a sound that is painful to me, I do not allow that sound around me. If there is a place I know will cause me discomfort, pressure, pain even disorientation I do not go there.
However, one cannot shut out the world of which we live in. A sufferer from hyperacusis must be ALLOWED the right to live as close to a normal lifestyle as possible. Whether this next doctor’s appointment will set me on the path to reaching that goal, I cannot say. However, I am determined! I want to walk into a store without pain, without the severe nausea setting in, without being so disoriented; it feels like I'm going to blackout from the pressure in my ears, the pain.
People have taken notice I am enjoying my work and it shows with my achievements. "I enjoy writing my own work but I found something I enjoy even more, writing the story that needs to be told, asking the questions that need to be asked and supporting a cause."
Whether it's online marketing articles, child advocacy or hyperacusis, I've taken apart of my life back that was stolen from me. A simple surgery gone somehow wrong; leaving me with tinnitus and hyperacusis. I feel a bit of my independence has come back.
I found these jobs on my own, I'm fighting the fight. I'm doing everything I can to make my life mine again. And though I may stumble and fall at least I can say I'm doing it.
Stop in and read one of my articles: With no cure in sight for hyperacusis can children be the key
I've gotten use to documenting things that happen specific outings, what causes pain when, how long, the onset of symptoms. I have come to realize a good day from a bad day. Hence a good day is a day where I can tolerate to a point the sounds around me, stay somewhat focused, force myself through the day.
A bad day, I don't like those much. I don't like talking about how every sound in the world seems to cause me pain. It doesn't matter how loud the sounds are because to you they are just sounds. The clock on the wall, refrigerator hum, tv on a volume of five, a cars muffler on a cold day, the ring or buzz of a phone, paper shuffling or noise from the keyboard. Yes, even the keyboard and scroll of a mouse. The day all voices seem to echo with such vibration in my ears even with the earplugs in, even with the earmuffs on. No, I like those days not!
Since my new career path as a journalist writing for the examiner and yahoo, I am given the ability to work at a pace suited to my needs. If my tinnitus has had me up since 12:00 a.m. I can at least sit down at my computer and work. If my hyperacusis is flared up in the day, I can take a break or stop for the day because I have been up working five hours before everyone else has started his or her day.
I am very strict about my surroundings, where I go, when I go and yet I still can't seem to find that right balance. Just when I think, I have found it and can notice a change; when I think I might have some sort of improvement. I realize it is not improvement; it is my strict routine that I have put into place that gives me such comfort. If there is a sound that is painful to me, I do not allow that sound around me. If there is a place I know will cause me discomfort, pressure, pain even disorientation I do not go there.
However, one cannot shut out the world of which we live in. A sufferer from hyperacusis must be ALLOWED the right to live as close to a normal lifestyle as possible. Whether this next doctor’s appointment will set me on the path to reaching that goal, I cannot say. However, I am determined! I want to walk into a store without pain, without the severe nausea setting in, without being so disoriented; it feels like I'm going to blackout from the pressure in my ears, the pain.
People have taken notice I am enjoying my work and it shows with my achievements. "I enjoy writing my own work but I found something I enjoy even more, writing the story that needs to be told, asking the questions that need to be asked and supporting a cause."
Whether it's online marketing articles, child advocacy or hyperacusis, I've taken apart of my life back that was stolen from me. A simple surgery gone somehow wrong; leaving me with tinnitus and hyperacusis. I feel a bit of my independence has come back.
I found these jobs on my own, I'm fighting the fight. I'm doing everything I can to make my life mine again. And though I may stumble and fall at least I can say I'm doing it.
Stop in and read one of my articles: With no cure in sight for hyperacusis can children be the key
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