The red tape of it all

February 3 2014

This has not been a good weekend. I had the speech therapist appointment on Friday, as you all know and documented everything. By the time I got home I was vomiting. As usual I went through the routine of the nausea pill and extra strength Tylenol for the pain. Which doesn't exactly seem to be doing what it was before for me.

Every sound seemed to echo in my ears causing a vibration feeling and making me extra irritable this weekend. I of course secluded myself from as much sound as possible. It's just so hard to even walk into my kitchen because I associate the kitchen as a pain zone. The refrigerator, water running, dishes, cutlery, cupboard doors, opening drawers.

Most the weekend I was just trying to healing from the latest of the outings I've had to take. Each one causing me days of recovery. Only this time my outing took me someplace where I got sick from. And when I say sick I'm not talking about the onset of symptoms I get with every outing but cold an illness, scratchy throat, fever, more nausea and vomiting on top of the tinnitus flared up and the hyperacusis flared up.

I've received a message from my general practitioners office, apparently the person from the medical review meeting in Jan. wants me to try a few things. Okay for one they are not a doctor, two their not even allowing me to get done what a specialist has already recommended, tinnitus retraining therapy and directional retraining therapy. So, it will be interesting to see just what they want me to do now!

I've been up since midnight so I've already got a 5 hour start on a day that normal people are just beginning. I'm behind on my articles because of two outings I had to go too and had doctors orders to rest and stay away from things that cause me more pain.

My medical accommodations say:

Accommodation #1

Work in low traffic area limiting exposure to cross conversations and secondary sounds.
Accommodate her with transportation to building.

Accommodation #2

Note: Patient has developed hyperacusis along with directional issues.

If pt is in physical danger because of directional issues with hearing, pt may need different placement.
Possible retraining therapy for hyperacusis and tinnitus and directional retraining.

Accommodation #3

Note: Hyperacusis and Tinnitus with chronic Otis media.

Tinnitus and Hyperacusis training therapy. Ear plugs as needed. Patient is overly sensitive to sound and will use her own discretion regarding comfortable volume and need for ear plugs.

Accommodation #4

Note: See specialist notes. Directional and Noise sensitivity.

I don't understand how many times these people need this medical condition stated for them. It's like they believe if they ask enough times it will just go away. Maybe if I was given the appropriate time to heal I would already be back to working full time. Instead of months of being told I have to do this and I have to do that. It's very frustrating, what part of all this do they not understand? The doctor didn't write it out in medical terminology, it's not a foreign language.

I have tried to be patient and understanding with these people, I understand it's just the red tape of it all. But I'm not going to sit back and take this discrimination much longer. It's been spelled out for them my medical condition. I have a specialist to see who deals specifically with my condition maybe they should let me get to that appointment a instead of causing me undo stress which will only keep making my symptoms flare up even more.

12:50 p.m.

Trying to work on my next article for the examiner but my tinnitus is off the chart day! I have such a migraine, it feels like my head wants to explode I've already taken the nausea pill and something for the migraine. See, this is what happens when people stress someone with tinnitus and hyperacusis, it's debilitating, work will have to wait. I need to lay down.